http://www.healio.com/endocrinology/thyroid/news/online/%7B496f404d-4fde-4f1f-b8fd-189b8b8fb45f%7D/new-campaign-emphasizes-support-for-people-with-thyroid-cancer
September 19, 2015
An interactive, educational campaign designed to help dispel myths that
thyroid cancer is a “good cancer,” was recently launched by The Light of
Life Foundation, ThyCa: Thyroid Cancer Survivors’ Association Inc. and
Eisai Inc., according to a press release.
“As a thyroid cancer survivor, I urge people to stop referring to
thyroid cancer as the ‘good cancer,’ as I believe it downplays patients’
experiences,” Joan Shey, founder of the Light of
Life Foundation, said in the release. “I hear time and time again from
patients how difficult their diagnosis and treatment were and that their
scars are more than skin deep. My hope is that this campaign can
educate about the many types of thyroid cancer and change the thyroid
cancer conversation.”
The campaign, “Myths and Truths About Thyroid Cancer,” is aimed
at informing people about the realities of thyroid cancer. Most thyroid
cancers can be successfully treated and many falsely believe that this
makes thyroid cancer “a good cancer.”
“Being part of a community of survivors is very important for people coping with thyroid cancer,” Gary Bloom, thyroid
cancer survivor and cofounder and execuative director of ThyCa, said in
the release. “ThyCa takes this to the heart, which is why we are proud
to provide support and resources to the thyroid cancer community. We
also know more needs to be done to elevate awareness of thyroid cancer
and what patients need in terms of support for the rest of our lives.”
People diagnosed with thyroid cancer may often feel misunderstood by
their family and friends, but the campaign emphasizes the need for
support and resources specific to their thyroid cancer experience, even
after their diagnosis.
“I see patients with advanced forms of thyroid cancer, which can
be aggressive, difficult to treat and often require the involvement of
an integrated health care team,” Marcia Brose, MD, PhD, associate
professor and director of Rare Cancers and Personalized Therapy at the
University of Pennsylvania’s Abramson Cancer Center, said in the
release. “Not all thyroid cancers are the same, and it is important that
people diagnosed with and treated for thyroid cancer understand their
treatment. In addition, if initial treatment does not eradicate their
disease, they should find a medical oncologist with experience in the
treatment of advanced thyroid cancer.”
I was diagnosed with thyroid cancer in Nov., 1999. Surgery and radioactive iodine followed. In Dec., 2006, I found a lump in my neck that turned cancerous. Shortly thereafter, it was found to have metastasized throughout my body and to be untreatable and inoperable. I started a clinical trial with Sutent (sunitinib) since Apr., 2007. In Nov., 2013, the tumors began growing again and I was removed from the Sutent Clinical Trial. I started a clinical trial taking of CEDIRANIB on 04/09/14.
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